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AudreySpirit blog — Family Caregiver

Hospital Stay Cheat Sheet - From the Donna Yadrich Library of Unsolicited Wisdom

Donna Yadrich

Hospital Stay Cheat Sheet - From the Donna Yadrich Library of Unsolicited Wisdom

Innumerable days were spent in hospitals, in all actuality, years were spent in the hospital. Below are some things only time and experience can teach. Audrey stayed at St. Mary's Hospital/Mayo Clinic, Children's Hospital Colorado/National Jewish, Children's Mercy Hospital in Kansas City, and pictured below is Audrey about 3-4 years old in The University of Kansas Hospital. Start Planning for the Hospital Discharge from the Very Beginning Get necessary notes and orders before anyone signs the discharge papers and you leave the hospital. Start keeping a list of things you may need a doctor note for (because administratively speaking, you are...

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The Hardest Job I Ever Had

Donna Yadrich

The Hardest Job I Ever Had

Being the parent of a medically complex and fragile child. And all too often absent parent of her brother. The hardest job was my honor, the hardest job inspires AudreySpirit.All Audrey wanted to do was strategize about Labor Day Sales, hang out with friends and start her freshman year of high school. Her older brother, Peter, was also beginning his freshman year away at college. I so wanted to help her get ready for her new school experience and help Peter love college life. I was so tired, I didn’t even feel tired anymore. Tired was just my state of...

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Family Caregivers of Children with Special Health Care Needs

Donna Yadrich

Family-Centered Care is so important and needs to be practiced as a universal standard to optimize the health and quality of life of each family member of special health care needs children (CSHCN) across the life course of special needs child, their siblings and parents.  I was so blessed to meet Jess Nelson, a LEND Fellow from Minnesota at the 2013 Association of Maternal and Child Health Programs (AMCHP) Conference.  She produced this Fact Sheet as coursework last semester https://lend.umn.edu/docs/LEND-Family_Caregiver-FACT_SHEET-9-13-13.pdf Please share your thoughts about the Fact Sheet using the survey link at the bottom of the document.

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