The Association of Maternal and Child Health Programs (AMCHP) works hard to advance each state's public health initiatives according to Maternal and Child Health (MCH) Bureau standards. Audrey led me to a new world of advocacy for children and youth with special health care needs that has morphed into state and national level advocacy opportunities which include adults. Here you can read more about how I got involved, and how you can too! http://www.amchp.org/AboutAMCHP/Newsletters/Pulse/Archive/2014/MayJune2014/Pages/Real-Life-Story.aspx
Family-Centered Care is so important and needs to be practiced as a universal standard to optimize the health and quality of life of each family member of special health care needs children (CSHCN) across the life course of special needs child, their siblings and parents. I was so blessed to meet Jess Nelson, a LEND Fellow from Minnesota at the 2013 Association of Maternal and Child Health Programs (AMCHP) Conference. She produced this Fact Sheet as coursework last semester https://lend.umn.edu/docs/LEND-Family_Caregiver-FACT_SHEET-9-13-13.pdf Please share your thoughts about the Fact Sheet using the survey link at the bottom of the document.